Comments on: When The Diagnosis is Autism: What You Can Do http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/ Making The Most of MidLife--Together Fri, 17 Dec 2010 21:56:45 +0000 hourly 1 http://wordpress.org/?v=3.0.3 By: Carol Freedman http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/comment-page-1/#comment-2969 Carol Freedman Sun, 05 Apr 2009 18:18:21 +0000 http://midlifebloggers.com/?p=929#comment-2969 I'm so glad you the post hit a chord for you, Julie. Sayer also keeps making milestones, now that I think of it. I used to worry he would never talk, now it can be hard to keep him quiet in the car. And, he always "tells on himself," saying things like "Sayer was in big trouble on the bus." Cracks me up! Still working on pronouns and keeping his mouth closed when eating but we're getting there.... I’m so glad you the post hit a chord for you, Julie. Sayer also keeps making milestones, now that I think of it. I used to worry he would never talk, now it can be hard to keep him quiet in the car. And, he always “tells on himself,” saying things like “Sayer was in big trouble on the bus.” Cracks me up! Still working on pronouns and keeping his mouth closed when eating but we’re getting there….

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By: Julie O'Malley http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/comment-page-1/#comment-2959 Julie O'Malley Fri, 03 Apr 2009 19:30:24 +0000 http://midlifebloggers.com/?p=929#comment-2959 Wow, get out of my head! You have NAILED it. I couldn't have said it better myself. If every parent of a newly diagnosed kid on the spectrum could read this and take it to heart, they'd be spared a lot of heartache. I remember agonizing over articles I'd read about the language window closing at age seven -- they basically said whatever verbal skills you child has at age seven will be as good as it gets. Pure, unadulterated BULL. My 12-year-old with PDD-NOS continues to make language strides month after month, year after year. Every time I think, "OK, this is better than I ever dreamed it would be and I can't hope for more," he goes to a new level. Years ago, my "fantasy" was that he'd one day call me Mom (or anything, just address me directly). Then it was that he'd speak in full sentences with subjects. Then it was that he'd have a reciprocal conversation of more than just a response to my question. Then it was that he'd initiate the talk, rather than only responding. Then it was that he'd start to grasp intangible concepts, and so on, and so on. In every case, my pie-in-the-sky fantasy has become an everyday reality. On a daily basis, the progress seems glacially slow. But in retrospect, it's been miraculous. My kid eats almost exclusively casein and gluten-laden foods. We tried eliminating them, but it didn't help him and nearly killed me with stress and food battles. I am riddled with guilt over his prmarily macaroni and cheese diet, but frankly, I can't see any way out short of torturous starvation. The fear of a bad taste or smell is so great that he has to stick with known foods that taste the same every single time. Unfortunately, that means processed crap. If anyone has words of wisdom for THAT particular problem, please enlighten me! Anyway, thanks again for this incredibly wise post! Wow, get out of my head! You have NAILED it. I couldn’t have said it better myself. If every parent of a newly diagnosed kid on the spectrum could read this and take it to heart, they’d be spared a lot of heartache.

I remember agonizing over articles I’d read about the language window closing at age seven — they basically said whatever verbal skills you child has at age seven will be as good as it gets. Pure, unadulterated BULL. My 12-year-old with PDD-NOS continues to make language strides month after month, year after year. Every time I think, “OK, this is better than I ever dreamed it would be and I can’t hope for more,” he goes to a new level.

Years ago, my “fantasy” was that he’d one day call me Mom (or anything, just address me directly). Then it was that he’d speak in full sentences with subjects. Then it was that he’d have a reciprocal conversation of more than just a response to my question. Then it was that he’d initiate the talk, rather than only responding. Then it was that he’d start to grasp intangible concepts, and so on, and so on. In every case, my pie-in-the-sky fantasy has become an everyday reality. On a daily basis, the progress seems glacially slow. But in retrospect, it’s been miraculous.

My kid eats almost exclusively casein and gluten-laden foods. We tried eliminating them, but it didn’t help him and nearly killed me with stress and food battles. I am riddled with guilt over his prmarily macaroni and cheese diet, but frankly, I can’t see any way out short of torturous starvation. The fear of a bad taste or smell is so great that he has to stick with known foods that taste the same every single time. Unfortunately, that means processed crap.

If anyone has words of wisdom for THAT particular problem, please enlighten me!

Anyway, thanks again for this incredibly wise post!

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By: Carol http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/comment-page-1/#comment-2895 Carol Wed, 25 Mar 2009 23:41:24 +0000 http://midlifebloggers.com/?p=929#comment-2895 Great, Velma, please do share with others; I do hope I can be of help to other women who are dealing with autism in their lives. I agree, Duchess, about vaccinations. Especially when you hear about children w/out immunizations getting whooping cough and such. If I had a quarter for every time I was asked if I thought shots "caused" Sayer's autism I'd pay for a nice spa day by now! Great, Velma, please do share with others; I do hope I can be of help to other women who are dealing with autism in their lives.

I agree, Duchess, about vaccinations. Especially when you hear about children w/out immunizations getting whooping cough and such. If I had a quarter for every time I was asked if I thought shots “caused” Sayer’s autism I’d pay for a nice spa day by now!

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By: Duchess http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/comment-page-1/#comment-2894 Duchess Wed, 25 Mar 2009 20:18:44 +0000 http://midlifebloggers.com/?p=929#comment-2894 What a sensible, informative post. I especially liked the advice that parents have enough guilt without starting to imagine they "caused" their child's autism by something they did, or failed to do. Young mothers certainly shouldn't fear they risk bringing on autism by protecting their babies against dangerous childhood diseases. What a sensible, informative post. I especially liked the advice that parents have enough guilt without starting to imagine they “caused” their child’s autism by something they did, or failed to do. Young mothers certainly shouldn’t fear they risk bringing on autism by protecting their babies against dangerous childhood diseases.

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By: Velma http://midlifebloggers.com/2009/03/25/when-the-diagnosis-is-autism-what-you-can-do/comment-page-1/#comment-2893 Velma Wed, 25 Mar 2009 19:13:40 +0000 http://midlifebloggers.com/?p=929#comment-2893 Terrific post! I'll be sure to pass it around to others. Terrific post! I’ll be sure to pass it around to others.

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